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Evidence Based Medicine, Shared Decision Making, and the Diagnostic Process
Norbert Donner-Banzhoff was Professor at the Department of General Medicine, Preventive and Rehabilitative Medicine at the University of Marburg until April 2023. He attained specialist recognition as a general practitioner in 1991 and joined the University of Marburg. In 1994 and 1995 he held a visiting professorship at the University of Toronto (Canada), where he undertook a master’s degree in community health.
He has a particular interest in evidence-based medicine and shared decision-making but one of his major interests is in the diagnostic process.
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“And the interest in diagnosis came because I discovered that diagnostic thinking and acting was different in British doctors than in doctors in continental Europe….
And I was fascinated. They were listening to the patient, drawing conclusions from what patients said. They’re not just ordering the tests but they make use of the history and the physical examination.…”
Today, we’re in Germany and I’m talking to Norbert Donner-Banzhoff. First tell us about the system of general practice/ primary care in Germany.
Norbert Donner-Banzhoff: Well, there are family doctors in primary care in Germany, but primary care is being provided by a whole bunch of different providers. There are family doctors but there are also general internists. And the peculiar thing in Germany is that patients have access to community based specialists as well. So, in other words, there is no formal gatekeeping system. Patients can opt for a voluntary gatekeeping system if they choose the family doctor and that family doctor is providing primary care access to other providers only on the basis of a referral. But this is still a minority. And so that’s an entirely different situation to other countries and other health care systems where GP’s have, economically speaking, a monopoly on primary care. In Germany this is not the case. And that’s our problem because we are competing with specialists.
That’s one problem and the other problem is fragmentation of care. The flow of information, of documentation of clinical information, is very difficult. If other countries are discussing the end of GP gatekeeping, you can you can use Germany as a bad example if you wish. I don’t know if that is the case anywhere in the world, but if it is happening, people can come over and see what the results are.
I’m very negative but there are also very positive things. We have made immense progress over the last 20- 25 years, in establishing family medicine in Germany. When I started, there were perhaps one and a half academic departments producing internationally visible results. And now practically every medical school in Germany has its primary care department- I would say a 12-18 departments that are visible on an international level. We have made plenty of progress, so that’s the good news. But the lack of a gatekeeping system is perhaps the main difference to systems that that you find predominantly in primary care journals because the more general practice has a gatekeeping system, the easier it is for teaching, to do research, and to publish your research. It becomes easier if there is gatekeeping, population registration, and standardized patient records are established.
DMacA: You wrote some years ago that it was difficult to attract doctors to family medicine. Is that still the case?
N D-B: Actually it’s difficult for any discipline in this country but the difficulty is in attracting young doctors to clinical medicine and it’s not just general practice or primary care in this regard. We have, actually, made a lot of progress because medical students now experience teachers in general practice, and that’s boosting their motivation to go into general practice. One could maybe say that, relatively speaking, relative to other disciplines, primary care has become more popular. But, overall, we have difficulties recruiting doctors into clinical disciplines and there are many reasons for that. And they don’t differ much between countries because other countries have similar problems. The reasons are probably more or less the same but with one difference, we train many more doctors per population than the UK for instance. We train larger numbers but we have a lot of waste in our system. And the irony is that in a wasteful system, you need plenty of doctors.
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“Illness is what I have on my way to the doctors and the disease is what I take home. What is important here is that our idea, or our categorization, or what we formulate in terms of disease, is always only preliminary. It’s an hypotheses which is being tested all the time.”
DMacA: Let’s move on to your own career, because you’ve covered a whole range of areas in general practice/ family medicine but your main interest appears to be diagnosis. Tell me about your interest in diagnosis.
N D-B: That began with my international experience. As a medical student, I went to the UK for a year. My girlfriend found out that medical training was much better in the UK than in Germany and she suggested that we go to the UK. I went with her and it was life changing. This was in Swansea in South Wales, before Swansea had a medical school and it was an arrangement by the German Academic Exchange Service. So, I was one of the very first medical students in Swansea before the official medical school started.
I had two attachments with general practice and the impression was just overwhelming. So I decided that general practice was the thing to do for the rest of my life. And the interest in diagnosis came because I discovered that diagnostic thinking and acting was different in British doctors than in doctors in continental Europe. For instance, at the ward round in cardiology at the hospital, I remember a patient with chest pain and the group of white coats around the bed discussed the quality, the location, and appearance of his chest pain for ten minutes or so. This never happened in any German hospital at all or in a continental European Hospital. And I thought, this is interesting, what they are doing is completely different.
And I was fascinated. They were listening to the patient, drawing conclusions from what patients said. They’re not just ordering the tests but they make use of the history and the physical examination. I found that fascinating. And in noticing the differences, it becomes more interesting. You question what you have done until this point or what your teachers have told you.
And, from that, my interest in diagnosis started and by some strange coincidences, I ended up as an academic at the university so I have had plenty of opportunity to take these thoughts and ideas further.
DMacA: You have written a book which is a very comprehensive exploration of diagnosis, and I was fascinated by some particular aspects. One was your description of how, in the scientific context patients have a disease, but in practice patients come with an illness. That’s a big difference.
N D-B: It is the big difference although, I must admit, I had not discovered the difference between the two. Wise people had done that before me. But this is, of course, a fundamental distinction.
Illness is what I have on my way to the doctors and the disease is what I take home. What is important here is that our idea, or our categorization, or what we formulate in terms of disease, is always only preliminary. It’s an hypotheses which is being tested all the time.
And I think that’s why GP’s are such modest people, because they test their hypothesis all the time. We realize how often we have to reject what we formulated the last time, and our hospital colleagues, they are so lucky they don’t have this kind of hypothesis testing. For that reason, they are much more self-confident. Whether they are happier than we are, I don’t know, that’s a tricky question. But, reality teaches us that modesty and that is the important thing.
And what I think is new or unusual in the book is that I try to bring together the diagnostic task, all the instruments that we find in clinical epidemiology but, on the other hand, to reflect the symbolic transactions that we have. And here, medicine is very old fashioned. It’s an archetypical archaic activity. And whether, what we do, what we say, what we investigate, has any objective biomedical relevance doesn’t matter at all at this level, and this symbolic level is there all the time with any healing person, any healing profession in the world. But whether its an academic tertiary care centre or in my practice, it doesn’t matter, it is always there. We can’t abolish it and we should not abolish it, we should use it. And that’s a big responsibility.
I’ve developed a model that consists of four layers. And these layers can be linked to certain stages of the history of medicine and health care. And at the bottom you have this archetypical healer and this tectonic level always exists. And in modern times, we are a bit ashamed of this, we all try to ignore or oppress it, but we shouldn’t. We should realize, well, this is our role, these are the effects that we have. And then I have developed a way to navigate these contradictions, these different layers and the roles they are linked to, all these contradictions that we are struggling with in our everyday care about how you can manage those so that your patients are happy, that doctors are happy, and they health care system is happy.
DMacA: You have a line that caught my imagination, that ‘X rays and injections are powerful rituals.’
N D-B: Yes, that’s what this archetypical healer does. He or she, is not so much working with words or being effective at that level, but by symbolic action. In Germany I think that, maybe in general, we are a bit more superstitious. We use many more things such as injections for musculoskeletal pain, and these are still used by many elderly GP’s. And, in a modern guideline on low back pain but you can’t just say leave that out. That’s tricky because patients and doctors will ask, what can I do instead? If I don’t give injections anymore there’s a vacuum and I have to develop completely new strategies to fill that. But that takes a long time. But I’m optimistic in this regard. The changes we have brought into medical teaching in this country, and I mean of general practice/ primary care, I think that gradually changing and improving and people have become more critical. But, we never get rid of our role, our task as the archetypical healer, which is always there. We should no misuse it, but should reflect on it.
“But that’s why we call it ‘Shared’… And I don’t start to de novo: I know my patient, perhaps for years or even decades. So I have a certain idea what he or she would favour in terms of values and in terms of which way to go. So ‘shared’ means not just sharing the present discussion but includes what we have had together in the past. “
DMacA: Now, let’s move on to a little bit of your work on decision making and the ARRIBA
N D-B: That’s our family of decision aids that we have developed for general practice. That story started, I think 16 years or so ago. And, perhaps the most impressive thing is the visual makeup of the decision aids. It’s a very nice quantitative presentation of numbers, of risk, of benefits, and also of harms.
It has become very popular in our country to the extent that we made it on to a popular quiz on TV. The question was-‘ What is ARRIBA?’ The possible answers included- the system to calculate the acoustics of the room for architects and the other was- the detection of turbulences intercontinental flights. And of course these were wrong. Our ARRIBA was the correct answer. So we are gaining in popularity!
DMacA: You had a conference this time last year and I read a statement in the introduction to the conference, that interesting, controversial and challenging. It questioned if the concept of shared decision making, which we all accept, is an abrogation of medical responsibility, a facet of neoliberalism where we pass on the responsibility to the patient. That’s quite challenging.
N D-B: Yes. The term Shared Decision Making touches on a very complex reality. And, what you alluded to is there. Shared Decision Making can mean leaving the patient alone. ‘I find that too difficult, dear patient, I leave that to you, and I will do what you want. But you will have to make the decision.’ There is always that risk, that’s why we call it ‘shared’. The alternative philosophy is usually called the consumers perspective and as the consumer is the sufferer, he or she can decide on her own and is free to choose.
But that’s why we call it ‘Shared’. I don’t just present information but I also try to find out what the patient’s values are. And I don’t start to de novo: I know my patient, perhaps for years or even decades. So I have a certain idea what he or she would favour in terms of values and in terms of which way to go. So ‘shared’ means not just sharing the present discussion but includes what we have had together in the past. We have this very nice term in German ‘erlebte Anamnese’ for the shared history that the doctor and patient have, sometimes for a long time. At this level, shared decision making is completely different from the computerized decision aids presented by an insurance company. Patients like to have some resources on their own but our ARRIBA family of decision aids is designed to be used in the consultation, always with the doctor and patient together, communicating about the topic. That’s different to many other decision aids. The majority of them are for patients or consumers or for citizens to go through on their own. But ARRIBA is being used only during the consultation. Of course, the patient gets a printout to think about at home, but it is consultation based.
“The changes we have brought into medical teaching in this country, and I mean of general practice/ primary care, I think that is gradually changing and improving and people have become more critical. But, we never get rid of our role, our task as the archetypical healer, which is always there. We should no misuse it, but should reflect on it.”
DMacA: My final question, because of my links with the Canadian Medical Association Journal, is about a paper you published some time ago about the potential bias in the free medical journals?
N D-B: Yes, this is a really a problem. There are medical journals you subscribe to and there are others you get for free. Many colleagues say: we get them for free and they are so nice and you don’t have to subscribe to anything. So we decided to look at it in a systematic way. We looked at about a dozen journals regularly read by GP’s, and we divided them in three groups. One was completely dependent on advertising drug companies, another group subscription only, and there was an intermediate group. So this was the exposure variable. And on the other hand we looked at articles, not advertisement, but articles covering recently marketed drugs and, with a blinded observer we quantified their tendency pro or contra . And we found that those journals dependent on advertising had a different tendency in their articles. So, being dependent on advertising corrupts the content and people should know that. I think that people are becoming more critical and there are alternatives to subscribe to. Nowadays these journals are predominantly digital but the problem remains the same. You have to make clear the source of your information and what your source of information financially depends on.
DMacA: It seems terrible to have brought this commercial aspect into a wonderful conversation that we had about diagnosis. Norbert, it’s been a real pleasure talking to you.
I’m absolutely fascinated by an interest in diagnosis, which ranges right across the whole philosophy of diagnosis and what we do in general practice. It’s been an absolute pleasure talking to you. Thank you very much indeed.
Photo credit:KISTENMACHER
Norbert, with his wife and daughter, at his farewell event.
